torsdag 2 januari 2025

Empty Nose Syndrome - My Husband’s Diagnosis After Septoplasty and Turbinate Reduction

Empty Nose Syndrome • Patient story • Podcast

A widow’s account of severe symptoms after septoplasty and turbinate reduction, an eventual Empty Nose Syndrome diagnosis, profound sleep deprivation, and a devastating outcome.

ENS patient story Septoplasty & turbinate reduction Updated with podcast
Content note: This article discusses severe postoperative suffering and a tragic death. The story is based on a personal Reddit account and has not been independently verified. It is presented for awareness and educational purposes, not as a medical or legal determination.

What happened after the nasal surgery?

According to the account, the husband underwent a septoplasty together with turbinate reduction at the beginning of a summer. His wife wrote that he had not understood beforehand that turbinate reduction would be performed and that it had not been discussed during the pre-operative consultation.

Before surgery, she described him as happy and healthy. After the procedure, however, she said he immediately felt that something was wrong. The most prominent early problem was extreme sleep disruption: he reportedly could not sleep for more than a few minutes at a time, even when using prescribed sleeping medication.

This distinction matters. A septoplasty is intended to correct the nasal septum, while turbinate reduction changes tissue that helps regulate airflow, humidification, warming and sensory perception inside the nose. Empty Nose Syndrome (ENS) is most often discussed in relation to turbinate surgery, although its mechanisms and presentation can vary between patients.

▶

Listen to the podcast

A narrated version of this case and the questions it raises about ENS after nasal surgery.

Immediate symptoms: severe sleep deprivation and loss of nasal sensation

The wife described sleep deprivation that became extraordinarily severe. She also wrote that the original surgeon would not take her husband’s calls, leading them to seek another ENT specialist at a large hospital.

According to her account, that specialist diagnosed Empty Nose Syndrome and attributed it to severe nerve damage. She reported a striking loss of sensation: her husband allegedly could not feel an endoscope inside his nose until it reached his throat.

The central feature of ENS can seem paradoxical: the nasal airway may look physically open, yet the patient can experience obstruction, insufficient airflow sensation, air hunger, dryness or a feeling of suffocation.

Research into ENS has examined altered nasal aerodynamics, mucosal cooling and trigeminal sensory function as possible contributors. The condition is still an active area of research, and individual patients can present differently.

The Empty Nose Syndrome diagnosis

In later discussion, the widow wrote that two ENTs had acknowledged ENS: one reportedly gave a provisional diagnosis and another a more confident diagnosis. She contrasted this with other clinicians, including the original surgeon, whom she said claimed they had never heard of the condition.

That disagreement is part of a broader problem faced by some ENS patients. Diagnosis is not based on a single universal laboratory test. Clinical evaluation may include symptoms, surgical history, examination, the ENS6Q questionnaire, cotton testing, imaging and, in specialist or research settings, assessment of nasal airflow and sensory function.

A devastating outcome for the family

The widow reported that her husband eventually became unable to cope with his condition and later died. She described the consequences not only for herself but also for their one-year-old daughter.

It is important not to turn an individual account into proof of medical causation. The post documents the widow’s experience and her understanding of what happened. At the same time, severe sleep disturbance, breathing discomfort and psychological distress are important clinical concerns in patients who report major symptoms after nasal surgery.

Learn more about Empty Nose Syndrome

For readers who want to move beyond a single patient story, these related articles cover ENS research, physiology, patient experiences and the psychological burden reported after nasal surgery.

Frequently asked questions about Empty Nose Syndrome

What is Empty Nose Syndrome (ENS)?
Empty Nose Syndrome is a post-surgical condition most often associated with procedures involving the nasal turbinates. A person may have an anatomically open nasal airway while experiencing paradoxical obstruction, reduced airflow sensation, dryness, burning, air hunger or breathing discomfort.
Can Empty Nose Syndrome occur after turbinate reduction?
ENS is most commonly discussed after surgery that reduces or alters the turbinates. Not everyone who undergoes turbinate surgery develops ENS, and the relationship between the amount of tissue changed, sensory function, airflow patterns and symptoms is complex.
Can ENS occur after septoplasty?
ENS is primarily associated with turbinate procedures rather than septoplasty alone. However, septoplasty and turbinate reduction are often performed during the same operation, so patients describing ENS after “septoplasty” may also have undergone a turbinate procedure.
Why can the nose feel blocked when it is physically open?
This is known as paradoxical nasal obstruction. Research has investigated whether altered airflow distribution, mucosal cooling and impaired trigeminal sensory signalling can reduce the normal perception of nasal airflow even when the airway is objectively open.
What are common symptoms reported with ENS?
Reported symptoms include paradoxical nasal obstruction, an abnormal feeling of excessive openness, reduced airflow sensation, dryness, burning, crusting, air hunger, sleep disturbance and substantial impairment of quality of life. Symptoms vary between individuals.
How is Empty Nose Syndrome diagnosed?
There is no single universal test. Assessment can involve the patient’s symptoms and surgical history, nasal examination, the ENS6Q questionnaire, the cotton test, CT imaging and specialist evaluation. Some research centres also investigate airflow and sensory function.
What is the ENS6Q?
The ENS6Q is a six-item symptom questionnaire developed to help identify symptom patterns associated with Empty Nose Syndrome. It is used as part of clinical assessment and research rather than as a stand-alone proof of diagnosis.
What is the cotton test for ENS?
During a cotton test, cotton is temporarily placed in selected areas of the nasal cavity to simulate added tissue volume. A meaningful improvement in symptoms can provide useful information during an ENS evaluation and may help guide reconstructive treatment planning.
Can ENS cause severe sleep problems?
Sleep disturbance is reported by some people with ENS and can be severe. Persistent breathing discomfort, dryness and abnormal airflow sensation may interfere with sleep. Severe or rapidly worsening sleep deprivation warrants medical assessment.
Is there a cure for Empty Nose Syndrome?
There is currently no single treatment that reliably cures every case. Management can include humidification and other conservative measures, while selected patients may be evaluated for procedures intended to restore tissue volume or modify airflow. Treatment should be individualized by clinicians familiar with ENS.

Dedicated Empty Nose Syndrome information site

For a focused collection of information about Empty Nose Syndrome, nasal airflow, symptoms, research and emerging treatment concepts, visit the separate ENS information project.

Visit Empty Nose Syndrome Info →

Original source and verification note

This article is based on a first-person account posted to the Empty Nose Syndrome community on Reddit. The account describes the wife’s experience and statements about her husband’s surgery, symptoms, diagnoses and death. These details have not been independently verified by this blog.

Read the original Reddit post

Original Reddit post

Screenshot of the original first-person account on which this article is based.

Screenshot of the original Reddit post describing severe symptoms after septoplasty and turbinate reduction
Original post from r/emptynosesyndrome. The screenshot documents the source account; the medical and legal claims in the post have not been independently verified by this blog.

Inga kommentarer:

Skicka en kommentar